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V I B R A T I O N S
VIBRATIONS NEWSLETTER OF COLORADO SERVICES FOR CHILDREN WHO ARE DEAFBLIND Serving Children with Combined Vision and Hearing Loss (Deafblindness), Their Families, and Service Providers Modified Spring 2005 Edition: Focus on Toys, Recreation and Play This is an edited version of the original newsletter. Only articles pertinent to toys, recreation and play have been retained as resource information. If you copy any of the content of this modified newsletter, please credit the original source. Taking Care of Yourself By Kathleen Walden DeVerna. Reprinted with permission from UPC Connection 2290 East 4500 South, Ste. #110, Salt Lake City, UT 84117. 801-272-1051 Being a parent is hard work. The hours are long, there is no pay, and the job is difficult physically and emotionally. It is also one of the most rewarding things a person can do. Few parents would trade the job for any other. Since you’ll have this job for a long time, it makes sense to develop some good work habits. Caring for and challenging children are important habits. Caring for and challenging yourself is just as important. You will be better able to respond to the needs of others if you take care of yourself along the way. How do I develop good habits? You probably already have lots of good habits. Make a list of the ways you take care of yourself and your family - you’ll see why your days seem so busy. Keep this list and look at it from time to time to remind yourself of all the wonderful things you already do. Now make a second need to make your life bottom. Choose two or list. This time write down what you fell you easier or better. Put the most important at the three items that are very important to you. Let those items be your plicated, break it into week dream vacation weekend. Or how or twice a week? Even when you can take a goals. If a goal seems too large or too comsmaller steps. Maybe you can’t take a tworight now, but you can get away for a long about arranging a break for yourself once setting up a special savings account for trip can be encouraging. Decide what fits for you and your family. Setting goals for yourself and working on realistic steps can help you make the progress you want. Review your goals and progress regularly, to see how much you’ve achieved and to determine what to work on next. If you aren’t Spring 2004 making the progress you expect, reexamine the goal, adjust the steps, or maybe take a break for awhile. There’s always another day or another way. I never have enough time! Most people feel there’s not enough time to get everything done, and parents are no exception. Managing your time better may help. As a first step, organize each day every morning. Make a list of what you need to do that day. Cross out each activity as you complete it. At the end of the day, notice how much you’ve done and move whatever is left to the next day. Meeting with doctors, therapists, teachers, and others can keep you pretty busy - even parents without all these extra appointments are busy. A weekly, monthly, or yearly calendar will help you keep track of your time. Fill appointments as you make them, and review the schedule from time to time. A written schedule helps you make sure you are doing what you want to be doing, and makes it easier to say “No!” to unimportant appointments. Share your calendar with people who don’t understand why you can’t make an appointment. Most professionals understand when parents are trying to organize their time - they work hard to manage their time wisely too. What’s Your Pleasure? Teaching Leisure Skills By Fan LaWare and David Wiley, Texas School for the Blind/Visually Impaired Originally printed in the April 1991, P.S. NEWS!!! Published by Texas Deafblind Outreach, Texas School for the Blind and Visually Impaired. Reprinted with permission. More attention is being paid recently to the importance of recreation and leisure skills as a part of special education curriculum. This particular focus is made clear in the Individual Transition Plan which requires identification of leisure outcomes as well as employment, education and independent living. Any discussion of recreation and leisure has to begin with the understanding that "leisure skills" implies personal choice making by participants. We all do many things that we would rather not be doing but we do not call them recreation, nor do we call the time spent doing them leisure. Therefore, a prerequisite to teaching leisure skills to young people is paying close attention to what they enjoy, helping them understand that leisure time is a time that they can make choices, and if they are unaccustomed to making choices, providing them with the skills and framework to do so. MAKING LISTS: Consequently, whether leisure skills are to be taught at home or at school, the first step is always doing a further survey of the child's interests, the family's interests, and the environments that the child/family move in. It's best to sit down and make a list of all the things that your child enjoys doing, remembering to get input from him/her to the greatest extent possible. Some of these things may seem a little weird like tearing up paper or putting things in purses. Don't make judgments about the value of the activity at this point, just collect the data. To elicit this information from some Spring 2004 2 children you might be able to simply ask for their ideas after explaining what you are doing. With children who are not as skilled in the area of communication you might need to spend time observing your child in a variety of settings to gain some insight to his/her preferences. After you make a list of the child's interests, the next list to make is what your family and your child's closest friends enjoy doing together. Because many of our leisure activities are done with somebody, it's best to learn some of the things the other people in your child's world like to do. The third list you will need to make is of the places your child and your family spends most of their time. Skills that you teach should be things that can be done in those environments. Now that you have your lists, use them and share them with relatives, baby sitters, teachers, friends or anyone who can help your child learn recreation and leisure skills. IMMEDIATE SKILLS: The first level of leisure skills that your child needs to know are those skills that we might refer to as "immediate skills." These are the skills that your child should use during periods when they have to wait, when they are receiving a minimal amount of supervision, or when other plans fall through: what your mother may have called "things to do on a rainy day." These skills are what every child needs, not only for himself, but so that other family members can take care of their own everyday needs. In most cases, developing these immediate skills is not so much a matter of teaching but of observing and adapting. Remember, leisure skills are those things that your child chooses to do and might not be the things you would expect. We have known kids who take great pleasure in pumping up inner tubes, washing dishes, sorting through candy wrappers they have saved, looking through binoculars, grinding coffee beans and collecting bowling pins. The important common denominator for all of these activities is that the child selects and enjoys the activity. Our job, as adults, then becomes letting them choose and letting them participate in that chosen activity. While some of the things your child may choose may seem "inappropriate", with some creativity and adaptation, you can turn these activities into meaningful leisure skills. (Editor's note: Tom Powell notes that there is not really that much difference in collecting candy wrappers and collecting stamps or rocks or baseball cards.) ADAPTING: An older student who still enjoys a push toy might easily be taught to push a carpet sweeper or a shuffle board stick instead. A dust mop proved to be a good substitute for a teenager who is blind and enjoyed exploring the space in a room by banging the ceiling with a stick. She had fun and kept the cobwebs at bay simultaneously. Someone who likes to push buttons might be taught to use a piano, push keys on a typewriter, push the slide changer on a slide projector, or learn to operate a tape recorder. A child who throws things could be taught to load the dryer, play horseshoes or shoot baskets. Kids who enjoy vibration might learn to use an electric toothbrush or operate a foot massager. Someone who loves to spin might enjoy playing on a merry-go-round or learning to dance. Activities should be those things done by typical people your child's age. Even if the activities your child enjoys are not typical for a child their age, the materials they use can and should be replaced by materials that are chronologically age appropriate. For example: Spring 2004 3 Activities and Material that are Age Appropriate Individual likes: For a young child: For an older child: to rock rocking horse rocking chair music A musical stuffed animal tape player with head sets to put objects into containers nesting eggs tools such as socket wrenches into form fitted tool set If you are stuck for ideas, start asking friends and family about their activities that include certain actions or that resemble the behavior your child seems to enjoy so much. Some children seem to need certain sensory stimulation to calm themselves such as light gazing, being inside tight spaces, putting things on their fingers, hands, head, etc. These behaviors might give direction to you in helping that child to develop some leisure skills. For example, the child might start a collection of lighted objects such as the type found in some of the novelty stores. They could spend time exploring them in their room, taking them off a shelf or out of a box, and putting them back. They could also take a few of these items with them in a back pack or fanny pack if they are going to be in a situation where they are required to wait for periods of time. A child who likes to be in tight places may enjoy a snuggle bag or bean bag chair with pillows or accessing some designated place that could be created within his room for him to crawl inside. Just “hanging out” can be a legitimate leisure skill if your child chooses it. EXPLORING: Beside developing "immediate skills" your child needs to be taught a number of new skills that can be used throughout his/her life. Because leisure activities should be done by choice, it is our responsibility to expose children to a variety of options from which they may choose. Many times children surprise us with the activities they enjoy once they are given the opportunity. We should let children sample all activities participated in by friends and family and that can be done in their familiar environments. This exploring should include both group and individual activities. While exploring with your child it's a good idea to note which activities your child shows some interest in doing. Try these activities a few times before giving up on them. Sometimes doing something for the first time can be frightening and overwhelming. TRAINING: When your child's exploration has identified some activities they seem to enjoy, your next step is to teach the skills they need to participate to the greatest extent possible. This involves gathering materials, learning skills and rules, possibly learning money exchange or budgeting, developing social skills and making choices. The teaching might also involve classmates or brothers and sisters who would like to participate in these activities as well. Your child may never be able to fully participate in all aspects of an activity but any part of the activity they enjoy is worth doing. For example, your child may not be able to play a game of basketball, but she might enjoy throwing out the ball to the other players, retrieving it if it goes out of bounds, making free throws, and interacting with peers in a group activity. The time we all spend enjoying ourselves is a very important part of our lives, we can help ensure that our children have a richer life by honoring their choices, developing their interests, exploring new activities and teaching them the leisure skills that they need. You might also find that teaching Spring 2004 4 a child to play is a treat for you as well. Editor's Note: If you are a parent who feels lost when you try to teach your child a new game or activity, ask your school to help. See that the goals on the IEP include skills that will facilitate the development of a variety of recreation and leisure options for your child. School personnel should solicit ideas and information from parents, friends, and family when they try to identify the areas of interest and the types of environments the child will likely access. The more independent an individual is in entertaining him/herself the better their chances are for functioning well within their immediate family and in adult living situations. Participating in recreational activities is often a natural way to make connections in the community. Having activities that you enjoy and opportunities to choose to do these activities regularly makes you a happier, healthier individual. Colorado Summer Camps Aspen Camp School for the Deaf B. J. Blocker, Executive Director P.O. Box 1494 923-2511 voice 6609 TTY Aspen, CO 81612 Phone: [email protected] www.acsd.org Every summer ACSD hosts over 100 Deaf and Hard of Hearing students, ages 8 - 20, from across the United States. All sessions (except the one-week Teen Arts & Innovations Session) include outdoor education, creative arts, drama, photography, horseback riding, river rafting, communication skill development, computer experience and opportunities for personal growth. Located in Old Snowmass, Colorado, twenty minutes from Aspen, this camp has been in existence for over 30 years. In addition, Scholarships are available for all families. ACSD has worked with teenagers in the past that also had low vision or Usher syndrome. Colorado Lions Camp P O Box 9043 Woodland Park, CO 80866 Phone: 719-687-2087 web: http://www.lionscampco.org/ This is a residential camp for persons with visual and/or hearing and/or speech impairments, mild cognitive and/or physical challenges. For ages 8-12, 13-18, 19-30, and 30+. Separate week-long sessions for each age group throughout the summer. Activities include horseback riding, swimming, nature studies, story telling, astronomy, high/low ropes, fishing, Western reenactment and open campfire. Not wheelchair accessible. Financial sponsorship available. Easters Seals Summer Camp 5755 West Alameda Avenue Lakewood, CO Phone: 303-233-1666 TTY: 303-232-5685 Easter Seals of Colorado has a number of different programs for children and adults with disabilities to help build self esteem and achieve independence. Programs include Camp Freedom for teens 15-21 with developmental disabilities, Camp Jerry's Kids for young adults with muscular dystrophy, Computer Fun Day Camp for children ages 6 to 7 with all types of disabilities and Talking with Technology camp for non-verbal children. The season opens June 3 for the following 10 weeks of residential camping, including fun activities such as fishing, swimming, horseback riding Camp Paha-City of Lakewood Special Populations Day Camp Using a Lakewood Elementary School Phone: 303-987-4869 12100 W. Alameda Parkway FAX 303-987-4863 (year round) Lakewood, Colorado 80228 E-mail: [email protected] Spring 2004 5 Other Organizations that Support Leisure and Recreation American Alliance for Health, Physical Education, Recreation and Dance 1900 Association Drive (703) 476-3400 Reston, VA 22091 Fax: (703) 476-9527 Students, educators in physical education, dance, health and recreation. Houses the Adapted Physical Activity Council. American Athletic Association for the Deaf 3607 Washington Blvd., #4 (801) 393-7916 Ogden, UT 84403-1737 Fax: (801) 393-2263 Fosters athletic competition among the deaf and regulates uniform rules governing such competition. Blind Outdoor Leisure Development 533 E. Main (303) 925-2086 Aspen, CO 81611 Assists blind persons in participating in outdoor recreation. Aids in the establishment of local recreation clubs. Designs and conducts training courses. National Handicapped Sports 451 Hungerford Dr., Ste. 100 (800) 966-4647 Rockville, MD 20850 Fax: (301) 217-0968 Promotes sports and recreation opportunities for individuals with physical disabilities. Provides direct services to people with mobility impairments, including those with visual impairments, head injuries, cerebral palsy, birth defects, and neuromuscular disabilities. National Lekotek Center 2100 Ridge Ave. (800) 366-7529 Evanston, IL 60201 Offers a family centered approach to play. Children with special needs—along with their parents, siblings, grandparents, neighborhood friends—attend monthly play sessions. Special Recreation, Inc. 362 Koser Ave. (319) 337-7578 Iowa City, IA 52446-3038 Organization for consumers with disabilities, their parents, rehabilitation professionals and volunteers. U.S. Toy Library Association 2530 Crawford Ave. Evanston, IL 60201-4954 National network of nearly 400 toy lending libraries serving children with and without disabilities. Families may borrow both commercially available and adapted toys. World Recreation Association of the Deaf, Inc./USA P.O. Box 92074 TTY: (716) 586-4208 Rochester, NY 14692-0074 Fax: (716) 475-7101 Established to foster the development of innovation in recreational and cultural activities for the deaf and hard-of-hearing community. Spring 2004 6 Taking Care of Yourself (cont.) Get the help you need, the way you need it. It might help to talk things over with your family, friends, co-workers, or other supportive people. They may want to help but don’t know what to do. They may be waiting for you to ask. Your spouse may not volunteer to take over one of your chores, but might be quite willing to give it a try if asked. A co-worker or neighbor might enjoy cooking a meal for your family during a particularly stressful time. Aunts, uncles, grandparents, and even siblings often want to be useful - they just need to know what to do. This doesn’t mean that anyone wants to be obligated to take over all of you responsibilities. Resentment can build when people feel pressured. But if you ask for and appreciate their efforts, they’ll be more likely to feel good about what they’re doing. And they’ll probably want to continue to do more. Here are some other ways to get support: • Some churches have parenting or support groups. They may provide child care during their group meetings. • Many communities have organized parent enrichment classes. • Some parents hire help to take care of routine chores so they have more time to spend with their family. • Therapists, teachers, and physicians may be able to show you how to handle your child’s special needs in easier ways. If you have a question, ask. • Social workers know of community programs that help support families in need. • Stress, time management, or assertiveness training may be helpful and and available in your community. What else can I do? Set up a daily routine, leaving plenty of time to get things done in a relaxed manner. Many children do not like to be rushed. They want and need to participate in every activity to the best of their abilities. When they’re hurried, they may become disorganized, agitated, or easily frustrated. It may seem as though it takes longer to get a child up and dressed in the morning without rushing, but things will be easier in the long run. • Start the morning earlier • Arrange the room so the important things are available and the rest are put away. • Child-proof the room to cut down on obstacles, hazards and distractions. Try lowering your standards on unimportant things. It really isn’t that important if the house is a little dusty. The lawn will survive even if it isn’t mowed every weekend. But there will be problems if your needs and the needs of your family aren’t met. Decide what’s really important to you and stick with it. It doesn’t matter if your home is perfect - what Spring 2004 7 does matter is how each and every member of your family feels. These feelings last a lot longer than a dusted coffee table or a waxed car. What about those “blue” days? It is normal for feelings to greatly affect how much and how well things go. Parents have a variety of feelings even under the best of circumstances. When there is a problem, the feelings may be exaggerated. Find someone to talk to - someone who understands how you think and accepts your feelings. Being able to talk about what is going on can be the best therapy. If you need more help, please ask - professional help is available in most communities. No one can “fix” things for you, but a good listener is a valuable friend and a real help during difficult times. Summary Taking care of yourself is not easy, but you have a long, complex job ahead you. If you take good care of yourself as you go along, it may make the work a little easier and more pleasant. of Stress Management “Survival Plan” Reprinted with permission from UPC Connection 2290 East 4500 South, Ste #110, Salt Lake City, UT 84117, 801- 272-1051 1. Recognize when you have too much stress. Learn to recognize your unique cues that tell you about your level of stress. Everyone has some stress in their lives. Remember, significant stress over a long period of time can lead to illness, accidents, or lowered selfesteem. 2. Talk out your troubles. Find a friend, member of the clergy, counselor, or psychotherapist you can be open with. Expressing your bottled-up tension to a sympathetic ear can be incredibly helpful. Be sure the person you talk to can keep confidences and accept you for who you are. Avoid people who give a lot of advice. Spring 2004 3. Learn a systematic, drug-free method to relaxation. Meditation, yoga, autogenic training or progressive relaxation can be learned from various accredited teachers, licensed psychotherapists, and even books. The only way it will work for you is if you practice relaxation on a regular basis. Practicing relaxation during crisis will probably not work. 4. Get regular physical exercise. Check with your physician before beginning any exercise program. You will be more likely to stay with an exercise program if you choose one that you really enjoy, rather than one that is hard work and drudgery. 5. Proper nutrition. Eat well balanced meals, and on a regular basis. You may want to consider moderate use of vitamins, especially if you are under a great deal of stress. 6. Sleep. Although each person has different needs, getting seven hours sleep, per night, on a regular basis will help moderate stress. 7. Learn to plan. Disorganization can breed stress. Having too many projects going simultaneously often leads to confusion, forgetfulness, and the sense that uncompleted projects are hanging over your head. When possible, take on projects 8 one at a time and work on them until completed. Schedule yourself. Prioritize. Delegate. Long range and short range planning. Quiet time. 8. Recognize and accept limits. Most of us set unreasonable and perfectionist goals for ourselves. We can never be perfect, so we often have a sense of failure no matter how well we perform. Set achievable goals for yourself. Learning to say “no” to others may be helpful here. You may want to take a class in or read about, assertiveness training. 9. Have fun. You need occasionally to escape from the pressures of life and have fun. Find pastimes which are absorbing and enjoyable to you no matter what you level of ability. Remember, you are NOT being lazy. Having fun is OK! 10. Be a positive person. Avoid criticizing others. Learn to praise the things you like in others. Focus upon the good qualities of people. 11. Learn to tolerate and forgive. Intolerance of others leads to frustration and anger. An attempt to really understand the way other people feel can make you more accepting of them. Spring 2004 12. Avoid unnecessary competition. There are many competitive situations in life we cannot avoid. Too much concern with winning in too many areas of life can create excessive tension and anxiety and make one unnecessarily aggressive. Extra Tips 1. Dress comfortably. When you feel comfortable in your clothes and look nice, you can meet the day with greater confidence. Pinchy shoes, creepy panty hose, tootight pants, etc. can ruin the best of moods. 2. Make duplicates of all keys. Put them where you can get to them when they are needed (when you’ve locked yourself out of the car, etc.). 3. Avoid rush hour traffic by leaving 30 minutes later or earlier. 4. Keep extra supplies of critical items on hand so that running out of something necessary does not add 5. Stress to an already hectic day (or night). Medicines, baby formula, personal hygiene items, soap...whatever you can’t get along well without. 6. Practice preventive maintenance for your mechanical appliances and machines. Keep things clean, serviced and operating correctly. 7. Avoid the use of alcohol, tranquilizers, sleeping pills that seem to reduce stress momentarily, but which increase it in the long run. 8. Take leisurely baths. Showers are more efficient, but a long soak in a hot, fragrant bath is more relaxing. (Unplug the phone.) 9. See the humor in life. Every situation has something funny about it if you look for it. Laughter is one of the best tension reducers! 10. Take a break from the children. Babysitters are not just for emergencies or special occasions. You are a legitimate person...exchange services with another mother so there is no cost involved. Take time for self-renewal. 11. Trust yourself to say “no” to more than you can handle. Don’t set yourself up. You know your schedule and demands, and you have the right to protect the investments you have already made. Examine your need to rescue, your need to please. 12. Work off tensions. When the stress response is triggered, the body prepares to fight or run. Since we usually can do neither, having a “leaning fit” or doing yard maintenance is very beneficial. Sports activities can have the same effect. 9 Recreation & Leisure Resources For People with Vision Loss (Updated Spring, 2003 from Envision’s In Touch, Summer, 2001) Adaptive Sports Association 970-259-0374 National Beep Baseball 614-442-1444 www.nbba.org American Blind Skiing Foundation 847-255-1739 National Camps for Blind Children 402-488-0981 The American Camping Association 800-428-2267 Breckenridge Outdoor Education Center 970-453-6422 Colorado Mountain School 888-267-7783 Courage Center 888-846-8253 Courage HANDI-HAM System 866-HANDIHAM (866-426-3442) Handicapped Scuba Association 949-498-4540 National Arts & Disability Center 310-794-1141 http://nadc.ucla.edu Spring 2004 National Sports Center for the Disabled 970-726-1540 Ski for Light 612-827-3232 Space Camp & Aviation Challenge for VI Students 304-822-4410 or 304-822-4883 Space Camp & Aviation Challenge for D/ HH Students 412-371-7000 United States Association for Blind Athletes 719-630-0422 US Blind Golf Association 850-893-4511 www.blindgolf.com United States Braille Chess Association 718-275-2209 10 LEARNING TO PLAY OR PLAYING TO LEARN Fostering Play Development Patterns in Children Who are Deafblind In this article Julia Martín Cuerdo, who is a teacher of deafblind children and Juan José Martínez González, a psychologist in social services, report their work on the importance of play for deafblind children. The authors work for ONCE in Spain. Why Play? Most children, as we have all had occasion to note, spend a good deal of their time playing. Each game is an excuse to explore, handle, or create, all of which contributes to their cognitive development. We often see, however, that deafblind children do not spend their time doing what other children of their age do: play. How can we help them play and how important is it to do so? Our purpose in this article is to reflect on the significance of some results from our everyday work at ONCE and share the observational records we use in different play situations. The play sessions were organized to provide: • • • time for exploring objects and toys, in which the adult remained at the child's side, participating in the game; free play time with no directional participation on the part of the adult; and free play time in which the child played alone, with the adult nearby but not participating. Dimensions Analyzed: The aspects of play recorded in our observations were: space , approach to and use of objects and toys, and communication and the scenarios where activities take place. Use of space: In this dimension we consider aspects relating to movement about and the child's capacity to undertake complex and coordinated movements in space (motility) in connection with game content. In general, deafblind children tended to make restricted use of space, with inhibited movement. Nonetheless, certain differences were noted depending on their remaining vision and hearing, which favored mobility and spatial organization and allowed for better control of the surrounding space. The restrictions observed may be considered as adaptive behavior to control space and enjoy the playful aspects of the activity. But, we should be alert to such restrictions so we can detect when they form a part of a general pattern of inhibited behavior that may obstruct play altogether. Generally speaking, the tendency towards restricted movement decreased when the child was accompanied by an adult. In such situations children were more flexible and their movements more expansive. The objectives of our action were geared to providing children with the resources that would allow them to control the space reserved for playing, to reduce the level of hyper-surveillance and facilitate playful attitudes. Spring 2004 11 Approach to and use of objects and toys: We are all aware of deafblind children's difficulties when it comes to interacting with objects. For this reason, we were interested in observing how such children approach toys and what use they made of them. The children usually did not make expected use of the objects; their behavior was geared more to movement and handling objects than to making any functional use of them. Some children avoided direct contact with objects, especially objects that were new to them. Another approach to exploration was intrusive, perhaps related to a prolongation of the oral phase. In our intervention, then, we had to bear in mind that these two attitudes, avoidance and intrusion, obstructed any opportunity to gain adapted knowledge of the object. In an attempt to overcome the children's inherent difficulty in recognizing objects, we attempted to promote experience, seeking to reduce the effects of the children's sensorial impairment or an insufficiently stimulating environment and teach children to use their sense of touch for full and systematic exploration. We worked systematically: asking them to pick up a toy and helping them to explore and discover its various uses. Over time, a change was observed in most of the children: on the one hand, they began to understand what "play" meant, and were able to distinguish it from "work". And on the other, they began to express preferences for certain objects, searching for them instead of resigning themselves to whatever was closest at hand. When the amount of time a child devoted to a given action or object, (making noise with a toy or moving it or squeezing it), was felt to be no longer useful - becoming repetitive or indicative of isolated behavior - we interrupted the game and suggested other activities to encourage experimentation with the object. Communication: Play is an ideal scenario for promoting interaction and the expression of emotion and intention. We tried, on the one hand, to appraise the child's ability to take advantage of adult availability by asking for help and, on the other hand, to ascertain whether they could share their interest in an object with others. As a general rule, at first the children either did not know how or found it very difficult to take full advantage of the adult's presence, tending towards passive, dependent or falsely independent attitudes. Rejection of an object was something that all children expressed very clearly; expressions of pleasure, smiles and vocalization of sounds, however, were not as obvious in all of them. To be more effective, we tried to observe when their demands were in response to a real need for help and when they were formulated merely to maintain consistent contact with the adult. In the latter case we felt it was more beneficial to make the child aware of our presence and availability than to try to respond to each and every one of his/her specific demands, since that could dissipate play even further. In short, what we sought was for the children to learn to make adequate use of the available adult and encourage them to use their own resources to respond to some of their needs. Spring 2004 12 In most cases, contact with the adult was observed to be predominantly physical. Some of the children demanded the adult's attention not only to ask for help but to show him/her an object and share their interest in it. Play scenarios: The scenarios we used were a table and a rug, both inside the classroom. We attempted to ascertain whether each child had a preference for one space or the other and whether his/her attitude towards toys and behavior in play was the same or different, depending on where it took place. In play involving food, small building toys, dolls and so on, the children were more active when at the table, where they control space better and felt safer. Children with some ability to make decisions and more independent in their movements were observed to pick up the toys and move them from one scenario to the other. When the game involved large building toys, all the children accepted the rug as their playground and none of them attempted to change to the table. In role-playing games, such as doctors, hairdressers and so on, the children preferred to sit at the table or stand up. When on the rug they were more passive, generally waiting for the adult to take the initiative. Our initial intention was to help children to play on their own, which is something they were not doing, but since they were in a classroom context with a group of classmates, we also tried to set up group play situations. This was easier in games involving movement, since they all seemed to like this sort of activity and were more highly motivated to participate. What did we find out? Not only are children who are deafblind able to play; they need to play. Despite the difficulties, we must bear in mind that play is an opportunity, as it is for any child, to enjoy themselves and express their emotions. It also contributes to the development of symbolic thought. It is we adults who need to strike the proper balance in offering them the help they need without interfering with their independence and growth. And this can only be achieved in a warm and stimulating environment that is at the same time respectful of the child's development process. For all these reasons, we believe that educational programs should lend special attention to these activities from the outset, for what can be better than learning at play or playing to learn? E-mail: [email protected] This newsletter was supported in whole or in part by the U. S. Department Education, Office of Special Education Programs, However, the opinions expressed herein do not necessarily reflect the policy or position of the U. Department of Education, Office of Special Education Programs, and no ficial endorsement by the Department should be inferred. Note: There are copyright restrictions on this document: however, please credit he source and support of federal funds when copying all or part of this material. This report is also available on the web for printing at: http://www.cde.state.co.us/cdesped/SD-Deafblind.htm Spring 2004 of S. ofno 13 From LET’S PLAY! PROJECTS - University of Buffalo, Center for Assistive Technology If a child has difficulty using a toy, it may be time for some simple adaptations. There are many simple adaptations to assist your child in getting the most ort of play. Ask yourself the following questions to determine what further adaptations are needed: Can your child reach the toy? What can you do to bring it closer or extend certain parts? Would accenting or highlighting certain areas of the toy make them easier to locate? Would making the toy more stable help it stay in a certain position? Does the toy need to be confined so it stays within your child’s reach? How can I make play more simple? ADAPTING TOYS Adapting toys can make them easier to use. There are several types of materials to use for different needs: Stabilizing Materials that support play by holding a toy within the child’s reach or vision. Often toys that stay “in one place” can be easier to use. Use them to hold a jack-in-the-box in place or connect a communication device to a crib. Dycem (Kapable Kids, Fred Sammons, Abilitations) Grip Liner; mug mats (Rubbermaid; Commercial) Velcro; Dual Lock (Commercial) Suction cups (Commercial) Carpet squares (Commercial) Magnetic tape on toy with cookie sheet as “table” Extending/Building Up These materials are used to build up certain access features. They help children press too-small buttons or keys, hold puzzle pieces or make markers easier to hold. Plasticine (Commercial) Magic Model Clay (Crayola) Popsicle sticks Cylindrical foam padding (Fred Sammons) Sponge rollers (Commercial) Knobs on puzzles Spring 2004 14 Highlighting Materials These materials are used to highlight/enhance certain areas on toys, making them easier to locate. Change the appearance or feel of the toy pieces. Try highlighting certain areas or masking others. They help to simplify toy design and facilitate independent play by children. Tape: painters, colored vinyl, colored masking tape Colored Velcro tape Wikki sticks Glued yarn, colored glue Black or contrasting color cloth for masking; cardboard templates, etc. Attaching These materials are used to bring items closer to the child, making reaching, grasping and playing less “work”. Links (Right Start, Discovery Toys, Commercial) Snaps on fabric tape (Fabric store) “Stringers” or Magic Shoelaces Elastic Straps (Fabric store; other Commercial) Attach-And-Play (Safety first; local) Colored Velcro straps (e.g. computer wire binders) Confining These materials preventing a toy from moving too far away from a child - out of the child’s reach or vision. These items create boundaries to help a child to control his immediate play environment. Hula-hoops (Commercial) Box tops Planter bases (Commercial) Other items can be used to create play areas which confine several toys. Their use may particularly benefit children with visual or physical impairments. Inflatable boats Tents Play environments - e.g. gardens, forts, castle, etc. Cribs, bathtubs, laundry baskets Simplifying Try simplifying how play materials are presented to your child. Limiting the number of toy choices and pieces may make play easier. Remove distractions from the play area before play begins. Turn off the TV, remove clutter and provide good lighting to decrease distractions from play. Select 1-2 toys at a time. Place toys on a contrasting color surface ⇒ when playing with toys with multiple pieces and colors, lay all the pieces on a solid colored surface. Spring 2004 15 Resources and Catalogs Below are listed a variety of places which offer catalogs or are a resource for toys. Lighthouse for the Blind (800) 829-0500 Texas State Library (800) 252-9605 Talking clocks/watches/calculators, braille games, cards, variable speed tape player/recorder Seedlings (800) 777-8552 Braille and Twin Reading Books Maxi-Aids (800) 522-6294 National Braille Press (617) 266-6160 Toy Manufacturers of America & American Foundation for the Blind Guide to Toys for Children Who are Blind or Visually Impaired (212) 675-1141 Switches to adapt appliances/toys Toys for Special Children (800) 832-8697 Toys R Us Toy Guide (703) 684-6763 Constructive Playthings (800) 832-0572 Discover Toys (800) 426-4777 Childcraft (800) 631-5657 Exceptional Teaching Aids (800) 549-6999 Chinaberry Book Service (800) 776-2242 Raised-line coloring book, scented clay, Wikki Stix Music for Little People (800) 346-4445 Lekotech Toy Resource Hotline (800) 366-PLAY (800)-366-7529 The Best Toys, Books & Videos for Kids (800) 535-1910 Descriptive Video Service (317) 579-0439 How to adapt toys; available through Exceptional Parent Library Speaking of Happiness…. Slow down and enjoy life. It's not only the scenery you miss by going too fast - you also miss the sense of where you are going and why. Eddie Cantor (1892 - 1964) At the height of laughter, the universe is flung into a kaleidoscope of new possibilities. Jean Houston Laughing is the sensation of feeling good all over and showing it principally in one spot. Josh Billings (1818 - 1885) Spring 2004 16 The Toy doctor’s Prescription for Play Reader toy suggestions by Louise Kinross Teacher Claudia Wood knows how important play is to children, but when she first came to Bloorview MacMillan Children’s Centre School, in Toronto, Canada, she couldn’t find any toys her kindergarten students could use. That’s because many had physical disabilities that made it difficult for the children to manipulate commercial toys. That changed when volunteer Roy Loach came on the scene. Roy - known affectionately as the “Toy Doctor” to her class - has taken on the role of adapting toys so that they require less manual dexterity. That includes wiring mechanical toys with jacks so that the kids can operate them by hitting a large switch and putting wooden knobs on puzzle pieces so they’re easier to pick up. “Roy has made our toys accessible,” Claudia says. Roy, 72, is a retired Toronto engineer who once owned a company with a machine shop. “I’ve always enjoyed mechanically inclined work, and there’s nothing more rewarding than the smiles children give me for fixing their toys,” Roy says. Three shelves of toys in Claudia’s class are covered with Roy’s handiwork. An example is a set of tiny alphabet ink stamps. Roy drilled small holes into each stamp and then glued wooden dowels into them so that they could easily be picked up and used. Roy estimates he’s completed about 30 projects with his metal and woodworking tools. Claudia says the adapted toys allow her kids to play independently - an important part of their development. Many of Roy’s adaptations are “quite simple for the average handy person,” he says. “If you don't have the tools or knowledge yourself, seek out help from a friend or relative who enjoys woodworking. Always check with you child’s teacher or therapist to make sure that your adaptations are appropriate.” Installing Touch Pad Switches Push a toggle and a toy dog walks. Slide a switch and the propeller on a toy helicopter spins. Battery-operated toys like these provide powerful cause and effect learning opportunities for kids. But for children with fine motor problems, they present a huge challenge. That’s because most have a small on/off switch that requires strength and precision to operate. This problem can be remedied by installing a touch-pad switch. What you’ll need: A small Phillips screw driver; cutting pliers; electric drill with a 1/4-inch bit; soldering iron; a 1/8-inch phone jack (#274-248A at Radio Shack); and an Ability or touch-pad switch, which can be bought from a switch supplier online, or which you can make your self (see next page). Spring 2004 17 How to do it: Take the toy apart with a screwdriver. Choose toys that don’t have plus coverings, because the coverings are difficult to remove and then replace. Drill a 1/4-inch hole in a place that won’t impede the function of the toy, or be cosmetically unattractive. In the 1/4-inch hole, install the phone jack. Cut the positive wire from the battery power, and solder in the jack. Make sure you install it so that the manual switch can still operate the toy when the touch pad switch isn’t connected. Put the toy back together. To use the pad switch, plug it into the jack and turn the manual switch on. To make an inexpensive pad switch: purchase a battery-operated closet light (sold at any hardware store); 30 inches of two-wire conductor wire; and a 1/8-inch phone plug (#724-284C at Radio Shack). The closet lights have a battery, bulb and switch inside, and are turned on by pushing the round pad on the outside. Take the light apart with a screwdriver and cut the two wires connected to the inside switch. Solder the two wires of the conductor to the switch wires, then solder the two wires at the other end to the phone plug. You’ve now created “a dandy, inexpensive pad switch,” Roy says. Creating knobs for puzzle pieces Jigsaw puzzles are great for promoting eye-hand coordination, but their pieces can be difficult to pick up for children with poor fine motor skills. You can get around this problem by attaching knobs to the pieces, making them easier to grasp. What you’ll need for plywood puzzles: A length of 1/4-inch round dowelling; a hack saw; file; drill press; and wood glue. How to do it: Saw up the dowelling into 1 and 1/2-inch long pieces, and file the ends to remove sharp edges. Using a drill press, take a piece of the puzzle and drill a 1/4-inch hole in it (you’ll usually position it close to the center, but make sure it doesn’t cover a key letter or word on the puzzle piece). Put glue on one of the dowels and push one end into the hole. Let the glue set, while you complete the same process with the other puzzle pieces. Children will now be able to better grasp the pieces with the 1and 1/2-inch long knobs you’ve attached. What you’ll need for cardboard puzzles: An electric drill with countersink tool; cutting pliers; 10-24x3/4-inch long, flat-head machine bolts with nuts (one for each puzzle piece); and a piece of 1/4-inch OD x 0.170 ID vinyl tubing (you’ll need a 1 and 1/2-inch long piece for each puzzle piece). How to do it: Cardboard puzzles are usually only about 1/8th of an inch thick, so it’s not practical to glue in 1/4-inch round dowels. Instead, take one of the cardboard puzzle pieces and drill a 3/16inch hole close to the center. At the bottom, use a tool to countersink it so that when you push the bolt in from the bottom, the beveled head is flush to the cardboard. Push the machine bolt through the bottom of the puzzle piece, and secure it with the nut. You now have a 3/4-inch bolt sticking up out of the puzzle piece. Cut a 1 and 1/2-inch long piece of vinyl tubing, and push it over the top of the screw. Children can now grab onto the vinyl tubing to pickup and place the puzzle piece. From: Eparent Services - http://www.eparent.com/toys/toys1001_PrescriptionforPlay.htm Spring 2004 18 Toys for Fun and Learning Reader toy suggestions by Eva Briggs My neighbors joke that I adapt so many toys, I’m going to have to build my friends’ son, Hank, who is 11 now and has 5q-syndrome which means he is missing a segment of the long arm of his fifth chromosome. As a result, he has poor muscle tone, poor coordination, and can speak only a few words. He can’t walk, but can crawl. One of my goals was to design toys that would encourage Hank to use his index finger so he would increase his strength and coordination for pointing and keyboarding. The first toy to encourage this skill used musical buttons recessed into holes that require the use to poke his/her finger into the hole to activate the sound. I purchased musical buttons at a craft store. I then found a small, sturdy, flat box. I made three round finger sized holes in the lid and then aligned them with three finger-length plastic tubes cut from 35 mm film canisters. I glued one music button at the bottom of each tube. I then used foam to pad the tubes in place, glued the lid onto the box and decoupaged a colorful design on the outside. When all three buttons are activated in rapid succession, there is a delightful cacophony! My son gave me the highest praise that a toymaker can hear - that this was the most annoying toy he could imagine! “Woolly Willie” is a toy that uses a magnet to rearrange iron filings into various hairdos and whiskers. I sewed a finger-sized fabric tube with a magnet sewn into the tip. The user slips the tube on like a glove finger, and can use the tip of his/her finger to draw on “Woolly Willie.” I also made some fatter magnetic sticks than the tiny one supplied with the toy by gluing magnets to the tip of a short segment of on-inch PVC pipe. My next toy will be custom finger puppets. I’m going to take photos of the faces of Hank’s family, friends, and pets and scan them into my computer, then crop and resize them to fingertip size and print them onto T-shirt transfer paper. I’ll then sew some fabric puppets (just simple white tubes will be fine) and iron the faces onto them. And then - voila! - custom finger puppets. Hank also loves noise and shiny objects. One of his favorite toys was made from a shiny coffee can with a lid. I took three small balls (ping pong balls or plastic cat toy balls with jingle bells inside them. I cut a hole in the lid a little larger than the balls. Now Hank can drop the balls in and make noise while practicing hand coordination. We discovered not only can you shake the can to make noise, if you shake it with a sort of spinning motion, you can watch the balls spinning through the coffee can lid. To encourage manipulation skills, I make Hank an age-appropriate busy box. I made a simple plywood box with three doors. Each one has a different latch, a barrel bolt, a window sash lock, and a deadbolt from a door. Discarded CDs affixed inside each door act like mirrors but are not so breakable. Hank can manipulate the latches, slam the doors for noise, and admire his reflection in the CDs. This toy could be made even noisier by putting various noise-making things inside. I Spring 2004 19 Another fun spinning toy is a Benham’s disc. This is a pattern of black and whit, which when spun produces colors. I used a discarded toy potters wheel, but any flat spinnable object, like a lazy susan will work. I found many Benham’s disc patterns on the internet. I resized them to fit my potter’s wheel and printed them out. I glued each one to a circle of cardboard from old cereal boxes. I then glued a small piece of Velcro loops on to the back of each circle and glued a piece of Velcro hooks to the center of the potter’s wheel. I glued a mall handle to the edge of the potter’s wheel to make it simple to grip. Now all one has to do is affix the pattern of his/her choice to the wheel with Velcro, give it a spin and watch color patterns form. I think one of the first toys I ever made for Hank was inspired by a card that made noise when opened - in this case, a roaring tiger. Hank likes to manipulate Velcro, so I sewed a fabric cover for the card. It was secured with Velcro. The card was completely covered but inside I sewed a clear plastic pocket. Hank’s dad can put a photo or note in the clear pocket so when Hank undoes the Velcro, he can open the care, hear the roar, and look for the surprise note or picture in the pocket. My most complicated toy but the one that I’m most proud of is an adapted sled that lets us bring Hank cross country skiing. I started with a plastic child’s sled. I mad outriggers from an old pair of child-sized cross country skis. I sawed down a plastic lawn chair to make a seat, which is inside a plastic laundry basket for lateral support. The seat has a harness made from the straps of a backpack. I also sewed custom pads for the seat. The sled is towed by PVC traces. Snap hooks attach one end of the traces to eye bolts on the front of the sled, and attach the other end to a waist belt. The whole contraption works great! From: Eparents.com - www.eparent.com/toys/toys1001_FunandLearning.htm. "For a small child there is no division between playing and learning; between the things he or she does “just for fun” and things that are “educational.” The child learns while living and any part of living that is enjoyable is also play." Penelope Leach Spring 2004 20 SUMMER INTERVENTION PROGRAM Things to Do on Your Summer Vacation From the Canadian Deafblind and Rubella Association - British Columbia Chapter www.cdbrabc.ca/ActCommunity.html Community Based Activities Learners with deafblindness need opportunities for first hand, real life experiences to continue to build upon their meaning of the world. Community based programming is a concept we use frequently to help facilitate this development. These outings provide the opportunity to work on many areas of development for the student in a meaningful environment. Prior to each outing, a “Trip Book” should be prepared with the student to help prepare him for the purpose and sequence of events during the trip. This book should contain the key items of the outing represented either by object cues or pictures. For example, a trip to the garden shop to buy seeds may contain the following items on each page: Page 1 - Student’s Name Page 2 - Car Keys and/or picture of a car Page 3 - Package of seeds/real seeds Page 4 - Money in a Ziploc bag glued into the trip book Page 5 - Shopping Bag to carry the seeds home in Page 6 - Car keys and/or a picture of a car Page 7 - Home symbol or picture The student with deafblindness and the intervener will then use this book as he goes through each step of the trip thus building on his language skills, cognitive skills, orientation and mobility and life skills. Once the outing is completed, the student can place the “Trip Book” in a binder which will soon become a “Souvenir Book” of all his outings. This souvenir book can be used in many ways: to reflect on the outings, to share with his family, and as an expressive means of communication if the student indicates he would like to do a trip again. If it is possible, it is beneficial to do the trip more than once to help the student learn to anticipate the sequence of events. You may wish to do these with another student, but be sure to remember that the entire trip is a learning experience for the student with deafblindness and they will require one-to-one intervention to ensure that they get the most from the experience. Following is a list of potential Community based outings: Duck pond Bakery Library Doctor’s Office helicopter Grocery store Dentist Berry picking Aquarium Spring 2004 Airport-plane Art Gallery Cannery Orchard Train 21 Museum Farmers market Farm Fish boats Bowling Fields Kayak Sailing Services Bird watching Gardening Police Station Sea Bus Theatre Restaurant Nature activities Freighters Vehicle Canoeing Animals Lake Fire Station Skiing Snowshoeing Ambulance Boats Chick hatchery Wharf Beach Horseback riding Tractor Nature Park Pet shop Dam hiking Hairdresser Hardware store Pulp mill Ranch Bus Waterfall Ice Rink Canoe Fire engine Shops River SPCA Swimming Hospital Veterinarian Pumpkin patch Dog/Cat show Chocolate factoryCheese factoryFish Hatchery Botanical garden Fishing Post office Lighthouse Flower gardens Bird sanctuary This is just the beginning. There are so many places to visit with the students which will enhance their real life experiences and their learning in all areas. Brainstorm with those who know him best. Remember to prepare your outing carefully for the maximum success and most of all, have fun! Fun with Foods! Simple cooking activities can be great fun for you and the child. Making toast together can be an adventure for the child who is deafblind. Keep your activities simple and repeat them often to help ensure that the child is learning and anticipating the steps involved, and encourage the child to gradually become more independent with some of the steps. Try making pudding, a cake mix, Pillsbury cookie dough where all you and your child have to do is cut and bake, simple sandwiches, etc. Go on a picnic and ensure that your child helps in the preparation of the food and in packing it. Here are a few of our favorites! Jello Fingers ☺ 4 envelopes unflavored gelatin ☺ 3 pkgs. (3 oz each) flavored Jello ☺ 4 cups boiling water 1. In a large bowl, combine unflavored gelatin and Jello powder. 2. Add boiling water and stir until gelatin is completely dissolved. 3. Pour into large shallow baking pan, chill till firm 4. Cut into squares to serve 5. Makes about 100 1” squares. Invite the neighborhood kids over to share! Spring 2004 22 If the child is tube fed and cannot eat by mouth or is not interested in food, try making some play dough recipes together. ☺ ☺ ☺ ☺ Playdough 2 cups salt 2/3 cup water plus a few drops of food coloring 1 cup cornstarch 1/2 cut cold water with a few drops of vanilla, lemon, or peppermint oil to give it an interesting scent 1. Mix salt and 2/3 cup water in sauce pan - stir over head three to four minutes 2. Remove from heat and add the cornstarch and remaining water 3. Stir until smooth ☺ ☺ ☺ ☺ ☺ ☺ Goop Mix 1/2 cup cornstarch with 1/2 cup water Add color if you wish Pour this mixture into a tray or in a large bowl Try to pick it up Add more cornstarch and see what happens. More water? Mixture can be reused. Note: Clay will not keep for more than a few days. Recreational Resources Things to Do This Summer! Adams Camp - 303-477-7501 - Day and week-long summer camps for children and their families with occupational therapy, physical therapy and speech. American Camping - 303-778-0109 Ext. 286, 1-800-428-2267 - Lists a variety of camps including camps for children with disabilities. Artreach - 303-443-2882 - Hot line for events: 303-433-2730 - Work to increase opportunities for people with disabilities to enjoy the arts. Angelview Therap. Horsemanship - 719-539-4381 - Poncha Springs Arsenal Anglers - 303-287-3304 Aqua/Hydrotherapy - 303 - 433-6887 - MS community resources Big Brothers/Big Sisters - 303-433-6975 - Call for a listing of programs throughout Colorado. Boulder Parks & Recreation Expanded - 303-413-7216 Boy Scouts of America - 972-580-2000 - Scouting for the Handicapped Service. Referrals and assistance to local troops. Breckenridge Outdoor Ed Program - 970-453-6422 - wilderness adventures for people with varying abilities, disabilities and special needs, skiing, rafting, rock climbing, etc. Camp Hope, Camp Share, Camp Promise - United Methodist Church camps - 303-733-3736 Spring 2004 23 Week-long camps for children with special needs, several locations throughout the state. Colorado Council, Handicap Horseback Riding - 303-841-2438 Colorado Div. Parks/Outdoor Recreation - Colorado Springs, - 719-471-0900, Denver - 303-8663437, Grand Junction - 970-255-6100 Colorado Lion’s Camp - Woodland Park - 719-687-2087 - Week-long adventures for children and adults with special needs. Colorado Therapeutic Riding - 303-652-9131 Denver Parks & Rec Special Needs Program - 303-839-4800 Easter Seals Colorado - Rocky Mountain Village - empire - 303-892-6063 or 970-569-2333 Offers a variety of week-long camps and respite weekends. Easter Seals Colorado - Warm Water Therapy Pool - 303-233-1666 or 1-800-875-4732 - Staffed by qualified professionals and physical therapists. Group and individual settings. Fellowship Camp - Black Hawk - 303-642-3428 Girl Scouts - USA - 212-852-8000 - Services for girls with disabilities. Referrals to local troops, training for leaders. H-Bar-H Horses for the Handicapped - Lake George - 719-748-3398 Handicapped Sports Program - 303-861-6590 Hearts and Horses - http://www.heartsandhorses.org - Loveland - 970-663-4200 Highland Ranch Therapy Specialist - 303-471-8861 - Offers a variety of programs in therapeutic recreation for all ages and abilities and willing to provide more programs to meet the needs of participants in the area. Kent Mountain Adventure - 970-586-5990 - courses arranged for special populations Kidlink (& Other Summer Programs) - 303-441-0526 - Mapleton Center for Rehabilitation - 311 Mapleton Ave., Boulder, CO 80304 Mapleton Therapy Pool - 303-441-0542 - 311 Mapleton, Boulder, CO 80304 National Sports Center for the Disabled - 970-726-1540 - Winter Park - summer (rafting, biking, hiking, sailing, camping) and winter (alpine and cross-country skiing, snow shoeing, snow boarding) recreation activities. Outdoor Buddies - 303-771-8216 - Helps people with disabilities experience the “out-of-doors” by matching with a volunteer. Saturday Challengers - 303-753-6688 or 303-839-4800 - Denver Options/Denver Parks & Rec Recreational programs for adults with developmental disabilities. Special Populations Summer Day Camp - 303-275-3416 Special Populations Programs - 303-987-2490 Very Special Arts Colorado - 303-777-0797 - Programs and services to help people with disabilities experience the arts. 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