15 th international scientific meeting VCFS EF Inc. Troy (Ditroit), july
15 th international scientific meeting VCFS EF Inc. Troy (Ditroit), july 18th 2008 • AIdel22 brief overview • Invitation to Rome AIdel 22 - Italy Founded the 4th of October of 2002 Internal Structure President + Board of Directory 200 Members Scientific Committee Technical Consultan cy MEMBERS = Main office = District offices AIdel22 Directory President: Giulietta Angelelli Cafiero Board of Directory: Alberto Gullino (Segretary) legal affairs Maria Duma (Vice -Segretary) administration Carla Sponticcia (Vice -Segretary) internal relationship Valeria Ferrario : events organization Amyel Loy : international relationship Alessandra Sarazani : social problems Alberto Da Vià: website master Rosalba Barattini : research & devolopment AIdel22 Scientific Commetee • Prof. Antonio BALDINI Telethon Institute of Genetic – University “Federico II” II”- Naples • Prof. Bruno DALLAPICCOLA Institute C.S.S Mendel – University “La Sapienza” Sapienza” - Roma Roma-• Dott Dott..ssa Maria Cristina DIGILIO Children’’s Hospital Bambino Ges Children Gesù ù- Rome Rome-• Prof. Bruno MARINO (Coordinator (Coordinator)) University “La Sapienza” Sapienza” – Rome • Prof. Pierpaolo MASTROIACOVO Director International Center on Birth Defects Defects-- Rome • Prof. Paolo ROSSI University “Tor Vergata Vergata””- Rome • Prof Alberto UGAZIO Children’’s Hospital Bambino Ges Children Gesù ù Rome WAY of COMUNICATION to Members • Web site www.aidel22.it – General information on the syndrome and the association – WEB FORUM – Q & A to and from the Scientific Committee – Legal information • Three-monthly newsletter • Phone assistance • Annual meeting Main Scientific Activities • 7 Scientific meetings : Rome, Turin, Milan, Florence, Bologna (2003/2008) • Diagnostic and therapeutic protocol for children and adolescents to be applied in the national network of 54 medical centers together with the “ Italian Association of Hematology and Pediatric Oncology” Oncology” • Diagnostic and therapeutic protocol for adults to be applied by an experimental project in the Israelitic Hospital of Rome • Multidisciplinary assistance model and family support desk together with the “ Italian Society of Pediatrics” Pediatrics” • Behaviour and emotion in children with VCFS research together with the Neuro-psychiatry group of Ospedale Careggi –Florence and Ospedale Bambino Ges Gesù ù- Rome • “Del 22” database together with the “ Association of Primitive Immunodeficiency”” (data collected on protocol indications) Immunodeficiency • AIdel22 brief overview • Invitation to Rome Our invitation to Rome • 16th Annual International Scientific Meeting The Velo-Cardio-Facial Syndrome Educational Foundation, inc. Hosted by AIdel 22 and the VCFSEF European Network • 3-5 july 2009 ROME, ITALY Congress Center “ Hotel Pineta Palace” Our invitation to Rome ROME, the eternal city • Rome, the Eternal City where art, culture and literature are as alive today as in the age of Michelangelo, gives you the possibility to discover its amazing outdoor museum: the Vatican City, the Forum, St. Angel Castle and the majesty of the Coliseum, all harmoniously surrounded by historical squares, as well as ancient palaces, nowadays famous high fashion houses. ROME, capital of Cristhianity Basilic of San Peter ROME, along the river Tevere, a millenary history St. Angel Castle and Bridge ROME, an unforgettable holiday A lesson of history throught the archaeology ……. Roman teatre of Ostia antica You will throw a coin into the Trevi’s fountain and you’ll come back to Rome….. Stairs of Piazza di Spagna AIdel 22 in the European Network The European network VCFSEF will support Italian association in the organization of congress Simultaneous translations will be available in English, Italian and French, to give the possibility to the families from different European European countries, to attend and participate to the meeting A new European association (Valencia(Valencia-Spain) will be introduced to the VCFSEF international group Some organizing aspects • During congress breaks participants will have dedicated places for “lunch with experts”. • Families will have two communicating rooms for baby care and two rooms with animators and games for children. • It will be at your disposal a list of hotels and bad & breakfast near the congress center. (€ 30/80 for night) • Saturday night we will organize a “touristic dinner” out of the congress center for all the participants, doctors and families.(optional) Congress center Hotel Pineta Palace • The Congress Centre has six modern meeting rooms with capacity from 20 to 800 seats,, all provided with professional equipments: videoconference, sound seats sound and video control booth, light systems, natural light in almost all rooms, projection (for video, slide and pc), Wi Wi--Fi internet access, cordless microphones, video surveillance on request request • Hotel web site www.hotelpinetapalace www. hotelpinetapalace.com .com Hotel Pineta Palace “ The hotel Pineta Palace Hotel, a modern building surrounded by a beautiful pinewood, is located in a residential area only 5 km from downtown, and that will satisfy all your requirements. Thanks to its quiet position, from where you can enjoy a unique view of the city and its surroundings, the Pineta Palace Hotel will be glad to offer you an unforgettable stay, as well as being the ideal place for your meetings and congresses” congresses” SPECIAL PRICE FOR OUR MEETING: € 96 single € 114 double room Hotel website www.hotelpinetapalace www. hotelpinetapalace.com .com AIdel 22 Board of Directory We are waiting for YOU!!!!