National Organization on Fetal Alcohol Syndrome Erin Frey, MD
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National Organization on Fetal Alcohol Syndrome Erin Frey, MD
National Organization on Fetal Alcohol Syndrome Erin Frey, MD NOFAS FASD K-12 PREVENTION CURRICULUM LESSON PLANS Fetal Alcohol Spectrum Disorders (FASD) Fetal Alcohol Syndrome • First described in 1973 • Definition – Fetal Alcohol Syndrome (FAS) is the term given to a set of physical, mental and neurobehavioral birth defects caused by maternal alcohol consumption during pregnancy 2005 Surgeon General’s Updated Recommendations: • Women who are pregnant should not drink. • A woman who has already consumed alcohol during pregnancy should stop to avoid further risks. • Women who are at risk for or are trying to become pregnant should not consume alcohol. • Health professionals should work with all women of child bearing age to reduce risk. FAS Fetal Alcohol Syndrome –only term diagnosed by health care providers ARND Alcohol-Related Neurodevelopmental Disorder PFAS Partial Fetal Alcohol Syndrome Fetal Alcohol Syndrome (FAS) represents only the “tip of the iceberg” relative to all alcohol-related effects FASD By The Numbers • 1% of all births (40,000 newborns each year). • Lifetime cost for one individual with FAS is at least $2 million. • Cost to the nation up to $6 billion each year for FAS alone. U.S. Department of Health and Human Services Substance Abuse and Mental Health Services Administration 2007 All AlcoholRelated Effects US Census Bureau Alcohol is a Teratogen • An agent that interrupts or alters the normal development of the fetus • “Of all the substances of abuse (including cocaine, heroin and marijuana), alcohol produces by far the most serious neurobehavioral effects in the fetus.” Institute of Medicine, 1996 Manifestations of CNS Dysfunction Associated with FAS • • • • • • • • • Attention/memory problems Hyperactivity Learning disabilities Behavior Problems Microcephaly Language & speech problems Altered muscle tone Poor fine & gross motor coordination Mental retardation FASD Through the Life Span School Issues and Concerns Developmental Overview Early School Age • • • • • • • • • • Continued sleep problems Making and keeping friends Reading social cues Boundary issues Doesn’t understand stranger safety Easily frustrated/tantrums Understanding cause/effect relationships Language/Speech low receptivity/high fluency Math problems (time/money) Developmental Overview School Age • Attention and memory problems • Learning problems (especially arithmetic) • Uninhibited/impulsive • Distractible • Lack of organizational skills • Developmental delays • Poor coordination FAS Developmental Overview Adolescence and Adults • • • • • • • Anxiety and depression Lying and Stealing Antisocial behavior Poor judgment Mood swings Naïve - victimization Socially inappropriate behaviors FAS Adolescents & Adults Clinical Implications • • • • • • • Poor judgment…………………easily victimized Attention deficits………….unfocused/distractible Arithmetic disability……….can’t handle money Memory problems….......doesn’t learn from experience Difficultly abstracting……..doesn’t understand consequences Disoriented in time and space….fails to perceive social cues Poor frustration tolerance……..quick to anger Potential “Secondary Disabilities” • Early school drop-out • Alcohol and drug abuse problems • Having children they can’t care for • Joblessness • Trouble with law • Mental health problems • Premature death Why Teach About FASD • Providing age appropriate education before conception can help reduce the risk of alcohol-exposed births. • Schools exercise a powerful influence over young people, making them ideal settings to educate about the dangers of drinking alcohol during pregnancy • Alcohol remains the number one drug of choice among the Nation’s youth • Approximately 20% of sexually active teenage girls (15-19) become pregnant each year in the U.S. • In 2004, the rate of past month binge drinking among pregnant women age 15 to 17 (8.8%) was more than twice that of pregnant women ate 26 to 44 (3.8%). U.S. Department of Health and Human Services Substance Abuse and Mental Health Services Administration 2007 K-12 Lesson Plans • What Teachers Need to Know – Learning about Fetal Alcohol Spectrum Disorders (FASD) – Signs and Symptoms of FASD – Common Identifiable Facial Features of FAS K-12 Lesson Plans • Sensitivity Caution – Discussing alcohol, tobacco, and other drugs (ATOD) with students • Family Letter • 12 Steps to Success For Students With FASD. • Strategies for School Staff • Websites and Resources Skill Emphasis/Health Education Standard • Standard 2 – Students will analyze the influence of family, peers, culture, media, technology and other factors on health behaviors. • 2.2.1. Identify how the family influences personal health practices and behaviors • Standard 8 – Students will demonstrate the ability to advocate for personal, family, and community health. • 8.2.1. Make requests to promote personal health. • 8.2.2. Encourage peers to make positive health choices. Teaching Steps 1. Read the Story Read the Karli and the Star of the Week book to students. Karli and the Star of the Week • A colorfully illustrated story book that teaches youth to be tolerant and accepting of all individuals regardless of their capabilities or disabilities. • 31 Pages 2. Discussion and Group Activity a. Ask students what they think about the story. b. Ask students to recall the disorder, Fetal Alcohol Syndrome, discussed in story. c. Ask students to think of something special about themselves d. Ask students to think of something special about someone else and one of their classmates e. Ask students to share something they need help with 3. Conclusion – Poem Skill Emphasis/Health Education Standard • Standard 1 – Students will comprehend concepts related to health promotion and disease prevention. • 1.5.1. – Describe the relationship between healthy behaviors and personal health. • 1.5.2. – Identify examples of emotional, intellectual, physical, and social health. • Standard 5 – Students will demonstrate the ability to use decision-making skills to enhance health. • 5.5.1. – Identify health related situations that might require a thoughtful decision. • 5.5.3. – List healthy options to health related issues or problems. • 5.5.5. – Choose a healthy option when making a decision. • Standard 7 – Students will demonstrate the ability to practice health-enhancing behaviors and avoid or reduce health risks. • 7.5.1. – Identify responsible personal health behaviors. • 7.5.2. – Demonstrate a variety of healthy practices and behaviors to maintain or improve personal health. • 7.5.3. – Demonstrate a variety of behaviors to avoid or reduce health risks. • Standard 8 – Students will demonstrate the ability to advocate for personal, family and community health. • 8.5.1. – Express opinions and give accurate information about health issues • 8.5.2. – Encourage others to make positive health choices. Teaching Steps 1. 2. 3. 4. Nutrition and Health Choices Harmful Substances Nutrition and Human Development Effects of Alcohol, Tobacco, and Other Drugs (ATOD) on the Developing Fetus 5. Discuss Fetal Alcohol Spectrum Disorders Activity #1 – CHOICES FOR A HEALTHIER LIFE Grade 3 Activity #2 – Healthier Living Word Search Grade 4 Activity #3 – Healthier Living Crossword Puzzle Grade 4 or 5 Skill Emphasis/Health Education Standard • Standard 5 – Students will demonstrate the ability to use decision making skills to enhance health • 5.8.1. – Identify circumstances that can help or hinder healthy decision making. • 5.8.6. – Choose healthy alternatives over unhealthy alternatives when making a decision. • Standard 7 – Students will demonstrate the ability to practice health-enhancing behaviors and avoid or reduce risks. • 7.8.2. – Demonstrate healthy practices and behaviors that will maintain or improve the health of self and others. • 7.8.3. – Demonstrate behaviors to avoid or reduce health risks to self and others. • Standard 8 – Students will demonstrate the ability to advocate for personal, family, and community health. • 8.8.1. – State a health enhancing position on a topic and support it with accurate information. • 8.8.2. – Demonstrate how to influence and support others to make positive health choices. Teaching Steps 1. Define Fetal Alcohol Spectrum Disorders 2. 3. 4. 5. (FASD) How Common is FASD? Reinforce A Strong No-Use Message Describe How FASD Can Affect the Brain What Are the Symptoms of FASD? Activity #1 – Short-Term Memory Challenge In Class Activity Activity #2 – FASD Community Advocacy Project Long-Term Assignment Activity #3 – Question and Answer In Class Activity Activity #4 – How Much Do You Know About Alcohol and Pregnancy? In Class or Take Home Activity Sheet or Quiz Activity #5 – Brain Structure and Function Identification Exercise In Class Activity or Homework Skill Emphasis/Health Education Standard • Standard 1 – Students will comprehend concepts related to health promotion and disease prevention to enhance health • 1.12.1. – Predict how health behaviors can impact health status • 1.12.4. – Analyze how genetics and family history can impact personal Health • Standard 4 – Students will demonstrate the ability to use interpersonal communication skills to enhance health and avoid or reduce health risks. • 4.12.1. – Utilize skills for communication effectively with family, peers, and others to enhance health. • 4.12.2. – Demonstrate refusal, negotiation, and collaboration skills to enhance health and avoid or reduce health risks. • Standard 5 – Students will demonstrate the ability to use decisionmaking skills to enhance health. • 5.12.1. Examine barriers that can hinder healthy decision making. • 5.12.2. – Determine the value of applying a thoughtful decision making process in health related situations. • 5.12.7. – Evaluate the effectiveness of health-related decisions. • Standard 7 – Students will demonstrate the ability to practice healthenhancing behaviors and avoid or reduce risks. • 7.12.1. – Analyze the role of individual responsibility for enhancing health • 7.12.3. – Demonstrate a variety of behaviors to avoid or reduce health risks to self and others. • Standard 8 – Students will demonstrate the ability to advocate for personal, family and community health. • 8.12.2. – Demonstrate how to influence and support others to make positive health choices. • 8.12.3. – Work cooperatively as an advocate for improving personal, family and community health. Teaching Steps 1. Define Fetal Alcohol Spectrum Disorders 2. 3. 4. 5. 6. (FASD) How Common Is FASD? Reinforce A Strong No-Use Message What Is Considered A Drink? What Role Do Partners, Friends and Family Members Play? View the Law & Order: SVU Video Activity #1 – Discuss the Video Classroom Activity Activity #2 – Alternative Ending To Law & Order: SVU Video Homework Assignment Activity #3 – Alcohol and Pregnancy Decision Making Case Studies Activity #4 – How Much Do You Know About Alcohol and Pregnancy Activity Sheet/Quiz Alcohol-Related Birth Defects 100% are preventable You can help educate a new generation and keep them free from alcohol exposed pregnancies. Erin Frey, MD Program Director National Organization on Fetal Alcohol Syndrome 900 17th Street NW, Suite 910 Washington, D.C. 20006 Phone: 202.785.4585 ext. 203 Fax: 202.466.6456 frey@nofas.org www.nofas.org