15 th international scientific meeting VCFS EF Inc. Troy (Ditroit), july

15 th international scientific meeting VCFS EF Inc.
Troy (Ditroit), july 18th 2008
• AIdel22 brief overview
• Invitation to Rome
AIdel 22
- Italy
Founded the 4th of October of 2002
Internal Structure
President
+
Board of
Directory
200
Members
Scientific
Committee
Technical
Consultan
cy
MEMBERS
= Main office
= District offices
AIdel22 Directory
President: Giulietta Angelelli Cafiero
Board of Directory:
Alberto Gullino (Segretary) legal affairs
Maria Duma (Vice -Segretary) administration
Carla Sponticcia (Vice -Segretary) internal relationship
Valeria Ferrario : events organization
Amyel Loy : international relationship
Alessandra Sarazani : social problems
Alberto Da Vià: website master
Rosalba Barattini : research & devolopment
AIdel22 Scientific Commetee
•
Prof. Antonio BALDINI
Telethon Institute of Genetic – University “Federico II”
II”- Naples
• Prof. Bruno DALLAPICCOLA
Institute C.S.S Mendel – University “La Sapienza”
Sapienza” - Roma
Roma-• Dott
Dott..ssa Maria Cristina DIGILIO
Children’’s Hospital Bambino Ges
Children
Gesù
ù- Rome
Rome-• Prof. Bruno MARINO (Coordinator
(Coordinator))
University “La Sapienza”
Sapienza” – Rome
• Prof. Pierpaolo MASTROIACOVO
Director International Center on Birth Defects
Defects-- Rome
• Prof. Paolo ROSSI
University “Tor Vergata
Vergata””- Rome
• Prof Alberto UGAZIO
Children’’s Hospital Bambino Ges
Children
Gesù
ù Rome
WAY of COMUNICATION to Members
• Web site www.aidel22.it
– General information on the syndrome and
the association
– WEB FORUM
– Q & A to and from the Scientific Committee
– Legal information
• Three-monthly newsletter
• Phone assistance
• Annual meeting
Main Scientific Activities
•
7 Scientific meetings : Rome, Turin, Milan, Florence, Bologna (2003/2008)
•
Diagnostic and therapeutic protocol for children and adolescents to
be applied in the national network of 54 medical centers together with the
“ Italian Association of Hematology and Pediatric Oncology”
Oncology”
•
Diagnostic and therapeutic protocol for adults to be applied by an
experimental project in the Israelitic Hospital of Rome
•
Multidisciplinary assistance model and family support desk together with
the “ Italian Society of Pediatrics”
Pediatrics”
•
Behaviour and emotion in children with VCFS research together with the
Neuro-psychiatry group of Ospedale Careggi –Florence and Ospedale
Bambino Ges
Gesù
ù- Rome
•
“Del 22” database together with the “ Association of Primitive
Immunodeficiency”” (data collected on protocol indications)
Immunodeficiency
• AIdel22 brief overview
• Invitation to Rome
Our invitation to Rome
• 16th Annual International Scientific Meeting
The Velo-Cardio-Facial Syndrome Educational
Foundation, inc.
Hosted by AIdel 22 and the VCFSEF European Network
• 3-5 july 2009 ROME, ITALY
Congress Center “ Hotel Pineta Palace”
Our invitation to Rome
ROME, the eternal city
•
Rome, the Eternal City where art, culture and literature are as alive
today as in the age of Michelangelo, gives you the possibility to
discover its amazing outdoor museum: the Vatican City, the Forum,
St. Angel Castle and the majesty of the Coliseum, all harmoniously
surrounded by historical squares, as well as ancient palaces,
nowadays famous high fashion houses.
ROME, capital of Cristhianity
Basilic of San Peter
ROME, along the river
Tevere, a millenary history
St. Angel Castle and Bridge
ROME, an unforgettable
holiday
A lesson of history
throught the
archaeology …….
Roman teatre of Ostia antica
You will throw a coin into the Trevi’s
fountain and you’ll come back to Rome…..
Stairs of Piazza di Spagna
AIdel 22
in the European Network
The European network VCFSEF will support Italian association in the
organization of congress
Simultaneous translations will be available in English, Italian and
French, to give the possibility to the families from different European
European
countries, to attend and participate to the meeting
A new European association (Valencia(Valencia-Spain) will be introduced to the
VCFSEF international group
Some organizing aspects
• During congress breaks participants will have
dedicated places for “lunch with experts”.
• Families will have two communicating rooms for
baby care and two rooms with animators and
games for children.
• It will be at your disposal a list of hotels and bad
& breakfast near the congress center. (€ 30/80
for night)
• Saturday night we will organize a “touristic
dinner” out of the congress center for all the
participants, doctors and families.(optional)
Congress center
Hotel Pineta Palace
•
The Congress Centre has six modern meeting rooms with capacity from 20 to 800
seats,, all provided with professional equipments: videoconference, sound
seats
sound and video
control booth, light systems, natural light in almost all rooms, projection (for video, slide
and pc), Wi
Wi--Fi internet access, cordless microphones, video surveillance on request
request
•
Hotel web site
www.hotelpinetapalace
www.
hotelpinetapalace.com
.com
Hotel Pineta Palace
“ The hotel Pineta Palace Hotel, a modern
building surrounded by a beautiful pinewood,
is located in a residential area only 5 km from
downtown, and that will satisfy all your
requirements. Thanks to its quiet position,
from where you can enjoy a unique view of
the city and its surroundings, the Pineta
Palace Hotel will be glad to offer you an
unforgettable stay, as well as being the ideal
place for your meetings and congresses”
congresses”
SPECIAL PRICE FOR OUR MEETING:
€ 96 single € 114 double room
Hotel website
www.hotelpinetapalace
www.
hotelpinetapalace.com
.com
AIdel 22 Board of Directory
We are waiting for
YOU!!!!